Waiting for the school bus

Back to School

Not a lot to report....

The boys start school tomorrow-- They are all excited but Brody might be a bit shy. I (Bill) took the boys to their open house last night-- the boys all met their teachers and got their desks. Brody was acting a little bit scared. I think he will be ok since Lucy (his next door neighbor and best friend) will be with him tomorrow and the teacher is going to let them sit next to each other.

The boys are all going to Whitehouse primary. Whitehouse does full day kindergarten but splits it up so the kids go every other day, Lucy is going to do this but Brody is going to go every day as we and his principal feel he would benefit from the extra kindergarten time.

Brody is still suffering from some neuromyopathy as a result of his chemo- in a nutshell it is nerve damage that starts at his extremities and works its way up-- we mentioned it with his left leg previously but it also has caused some hand co-ordination issues and it makes it difficult to hold a pencil and crayons he can do it but it is somewhat difficult for him to write neatly-- he has come a long way but we and his Principal think he would benefit from the extra time working through it, neuromyopathy induced by chemo is reversible but it just takes a while and generally works back down to the extremities... our only concern was Brody feeling ostracized for having to go to kindergarten every day. It is not uncommon though(there is another boy in Brody's class doing this and there was a boy in Geordi's kindergarten class that did this)... Brody is also continuing his speech therapy through the school district while he is at school and so he won't miss anything by going to his speech class. We will miss spending some one on one time with Brody-- seems like they boys all have to share mom and dad most of the time....

Not much else going on with us....

More later...

Bill

Curesearch Walk

We were near the front

Not much to report

Brody had his doppler ultrasound last week and it pretty much confirmed what they thought. They want us to follow up again in October for Brody's next ct...  Brody sees his radiation oncologist in 2 weeks.

We participated in the Toledo CureSearch Walk last saturday....  sunny day and a bit hot....  there was a pretty big turnout considering it was the first one in the Toledo area...  our team raised nearly $1000...  the walk raised just over $30,000....  thanks to everyone that joined in the walk and donated to our team.... they had a very moving opening ceremony in which they had all the kids being treated or completed treatment go up and say there name and signed a large banner.  Then they had all the teams who were walking in memory of someone who had lost their battle come up and get a white balloon....  then they observed a moment of silence and released together the balloons into the clear blue sky. Some event sponsors provided snacks and drinks.... crafts for the kids and a bounce house.... the organizers did a fantastic job.

Not a whole lot going on with us....  the boys are going to the Ohio state fair in Columbus on Friday (meeting their grandpa there)... we have resumed some homeschooling...  just a little bit to get the boys back in the swing of it since they had an extended break fron school..  just an hour or so a few times a week. 

Thats about it with us,

More later...