Tuesday, June 5, 2012

Just Finished Putting Together Cool Lego Hulk He Got All the Way From CA

Thank you Theresa,  Richard,  Steph,  Jenny,  Ferris and Robin for all the fun,  cool stuff from CA.   Boys were very excited about package from CA and even more so once they started opening it.   Thanks!

Having Fun Riding Big-Wheels

Pokemon Battles and Just Plain Silly Time

Sunday, June 3, 2012

Brody Fishing

We found some old fishing line, hook,  and sticks while hiking along lakeshore.  We fashioned our own fishing pole and Brody tried his hand at fishing.   Unfortunately all we had for bait was some bread.  Little minnows and some bugs took interest but no large fish.   Oh well,  it was fun anyway.

Brody Getting his Haircut

Brody's hair has been falling out quickly.   He had been very resistant to cutting most of it off this time even though he's been constantly bothered by it falling out.   He finally agreed late Saturday to let Barbie go ahead and cut most of the rest of his hair off.   I think he's still just as cute without hair,  of course.   But Brody wishes he could keep his hair.  (so do I but the hair loss is small potatoes compared to all the other things he has to endure so I won't worry about the hair.   got enough worries)

Friday, June 1, 2012

Brody's Tumor is Shrinking, Yay!

Brody had a CT Scan today.   We got the results back today that his tumor has gotten smaller since switching to the new chemo.   At last CT scan the tumor was 11.5 by 8.5.   This time it is 10.5 by 8.  So things are finally headed in the right direction!   Brody was ecstatic at the news today as well.   And was even more excited when the doctor told him he did not have to come back into the hospital at all next week.   Not even for labs.   Brody gets a break until June 11th.   He will be admitted for chemo for 6 days starting June 11th.   He will get new drugs he has not had before at this admission.   He will get Etoposide,  Ifosfamide and MESNA that week.   Then he will get 3 week break from chemo and will be admitted to do the Vincristine,  Adriamycin,  Cyclophosphamide and MESNA again.   He will alternate between these drugs every 3 weeks.   Brody handled the Vincristine,  Adriamycin,  Cyclophosphamide ok.   We are nervous about how he will do with the Etoposide,  Ifosfamide and MESNA.   This part of regimen is known to cause a lot of nausea and vomiting.   Brody will receive lots of nausea prevention meds to help.   We hope it will prevent it from being too bad.  

Brody has been feeling much better the last few days.   More energetic,  less painful episodes (no pain last couple days),  and he's eating more. 

We plan to take the time to just have fun this week while Brody is feeling so much better.  

Thanks to everyone for all the prayers and support.   Keep the prayers going.   I think they're working!

Brody napping just before surgery to get nephrostomy tubes a couple weeks ago