Sorry we haven’t updated in a few days—as I said before, no news is good news..

 

Brody continues to feel better overall. He can walk for a bit with assistance now and seems to be able to crawl without a problem (we finally got him to put his nephrostomy tube in a back pack that he wears so he doesn’t drag it when he crawls (Dad is afraid he will catch it and pull it out). Hopefully this will be removed in the not too distant future.

 

He is doing somewhat better taking his oral meds- he managed to keep down his Bactrim (antibiotic) and is now off it til next week when he gets his next chemo dose.He has had a few excursions the last few days. He is also doing better taking his  Nystatin which he just needs to swish in his mouth and spit out… we were having to swab his mouth which he didn’t like and he finally figured out that him swishing and spitting it out without the swap is easier (he did throw up from the swab gagging him before).

 

He is now complaining of jaw pain which is a side affect of one of his chemo drugs so this is making it uncomfortable for him to eat. We are giving him Glutamine supplements (powder dissolved in drinks) which is supposed to help with this. I tried to get him to eat ice cream but for some reason he isn’t interested in it… might need to start making him smoothies…

 

Trish and our friend Terri took the boys went to the park in Grand Rapids Ohio (near the Maumee river) on Thursday while I was at work and Brody went down the slides and on the swing and rode around in a wagon—they were there several hours and had a good time (ate ice cream and looked at the nice views there).

 

On Friday they went to Toys R Us and the boys finally got to use some gift cards they got for their Birthdays last month (Brody turned 4 and Jaden turned 5).

 

Yesterday the boys played around the house—video games and the new toys they got…

 

I’ve finally returned to work after missing 3 weeks mostly helping to care for Brody when he was hospitalized—and have worked the last 4 days (including today-Easter). I am going to continue to work my rotating 12 hour shift schedule as it allows me to work (14) 12 hour days out of every 28 and gives me more “full Days” at home during the week-- but am trying to arrange it so I don’t have to work my night turn (my normal schedule alternates between days and nights every 28 days).

 

That’s about it for now… hopefully Trish will take and post some easter egg hunting pics today.

 

Bill