Friday, March 29, 2013

Resuming Bevacizumab today

Brody is scheduled to resume his bevacizumab today. This is one of 3 chemo drugs he has been on since last July-- this one works by preventing new blood vessel formation. He has been off this for 9 weeks now (accepted practice is to be off this for 4 weeks prior to and 4 weeks after surgery)-- we were extremely nervous about discontinuing this prior to surgery because his tumor was already so big. We have been less nervous since, but have been anxious to get it resumed.

Brody has been feeling pretty well lately-- we continue to struggle to get him to eat though. He has always been finicky but he doesn't seem to have much interest in  some of what we've come to call his "go to" foods lately and he hasn't had much of an appetite when he does eat and as a result-- his weight has been about steady since after his surgery (about 5 pounds less then before his surgery).

His "go to" foods are cereal (Cocoa pebbles & Cinnamon Toast crunch mostly), Spaghetti-os with meatballs, pizza, Pizza rolls-- and he hasn't had much interest in these lately and when you ask him what he wants when he is hunggy he says "I don't know" and when we suggests food too him he will sometimes get mad at us for suggesting food he doesn't like.

The good news is that he has been feeling pretty good-- his incision is healing pretty well-- he is running around like his old self but he does tire easily it seems. He gets in our hot tub almost daily-- he really loves the water and missed it alot when he couldn't go in because of his nephrostomy tube that he had since May of last year-- We will definitely need to get the pool up (we bought a cheap above ground pool a few years ago after he as first diagnosed) when it warms up some more.

We took a few weeks off from home school for Brody's surgery but resumed for Geordi and Jaden on the 11th... we let Brody off an extra week until he was feeling better. Brody's reading has really improved the last few months and he continues to surprise us in how well he can read.

We re-enrolled Geordi in public school this past week (start of the 4th term)-- his first day back ended up being a snow day (no school)-- we didn't have a huge storm but the roads were relatively bad and I am assuming with our mild winter, they had snow days to burn. Geordi has really missed seeing his friends and is happy to be back. Jaden hasn't shown any interest in returning to public school and in our opinion he is excelling at home school so we are content in home schooling Brody and Jaden the rest of the year.

That about it for us...

Thanks to everyone for keeping us in your thoughts and prayers....


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