Thursday, February 20, 2014

Started Radiation Therapy

Brody had a "relatively" good day compared to earlier in the week. His belly is still distended but his pain was well managed today. He has not gotten any Morphine since last night and has been taking the oral bentyl capsules that ease up his "gut cramps" so while he does have occasional belly pain, it isn't for too long or too severe..

He was supposed to get blood today due to low hemoglobin yesterday, but his hemoglobin came up some so they didn't have to give it. His color and dimeanor was much improved today too.
He played games with Jaden and got his chemo and watched "The Tooth Fairy". Then he was taken over to Flower Hospital and did his radiation therapy. The session lasted about 20 to 30 minutes and according to the nurses/technicians, he did great-- he has to lay perfectly still in a body mold they made earlier in the week-- they use lasers shining on his body (the tatoo marks they made on tuesday) to align the machine with his body so they can precisely aim the radiation at the tumor in his spinal column-- the radiation part lasts about 15 to 20 minutes-- 14 more sessions to go (they operate monday through friday)so he will be done in 3 weeks-- his appointments are all in the afternoon vs when he was 4 years old and they made him go at 7:15 in the morning.

When we go back over to Toldeo Hospital, Brody watched Monsters University and finally ate a little bit of food... he hasn't had anything to eat that he could keep down since Sunday, he has been drinking chocolate milk occassionally. He did eat a gummi "car" yesterday-- today he ate a couple pieces of canned sliced peaches and 4 peanut butter crackers out of a vending machine (that is what he wanted) and has so far tolerated them well... he just sent Trish out to get him some "movie" popcorn.

As mentioned previously-- is biggest issue is bowel control and also he doesn't really notice when his pull up has stool in it either so he has been going through alot of pull ups-- hoping the radiation therapy starts helping with this soon. Kid has amazingly tolerated this-- we explained to him why this is happening that it is not at all his fault-- he isn't crazy about mom and dad cleaning him up but he has suffered from "raw butt" before and knows that is a lot worse--

We finally got our "Hamster" problem taken care of--  there are 4 more hamsters that need to be adopted but one of the parents in our boys cub scout troop has taken them and said we have enough to deal with now and she will find homes for them (there were 7 needing homes but she found homes for 3 of them already).

Another issue right now is Geordi- he woke up with a sore throat this morning. I checked his temperature this morning and it was ok-- I gave him some motrin and grape juice and he said it felt better before he got on the school bus.... we got a call from the school nurse today that he had a fever..... took him to the doctor and he tested positve for Strep... so he is on antibiotics and is going home with Trish's dad tomorrow. Hopefully he will recover quickly.

Thats about all I can think of now-- thanks for all the words and prayers-- (most of these we get on facebook nowadays)....

Bill

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