Brody has been having his labs followed very closely this week so was in for labs on Monday, Wednesday, and Friday at Toledo hospital. He of course is also getting his radiation therapy at Flower Hospital every afternoon and has been doing great with laying perfectly still while this occurs. Brody also got his Bevacizumab chemo (which has held the previous week due to his bowel distension) on Wednesday (on this regimen he is supposed to get it every other week).
Brody has been slowly improving over the week and is feeling pretty good most of the time. His bowel movements aren't quite as frequent and his persistent groin swelling finally started going down on thursday and looked pretty much normal size and shape by friday night. His main complaint has been pain in his lower left leg that comes and goes but when it comes it hurts him pretty bad. We are hoping it is referred pain from the tumor pressing on the nerves in his spinal column and the radiation therapy will hopefully take care of his. He is still favoring his left leg when he walks and has kind of developed a "skip" to get around (which we like much better then him hopping or crawling).
Brody started a new Chemo regimen back on the 19th of February only 1 week after starting a new round of his previous chemo regimen, so his counts as expected have dropped way down. His White Blood Cell count is very low as is his Hemoglobin and Platelets. The Hemoglobin and platelets can be fixed by a transfusion-- and we are expecting one or both to likely occur this week. We have been giving Brody Neupogen injections each night since last Monday and hopefully his counts will bounce back up soon.
Brody turns 8 tomorrow and we celebrated his birthday today with a bunch of his friends. Since he isn't very mobile we had a "Movie" party at a local theater. The kids watched "the Lego Movie" and then had some cake and presents opening afterwards in a little party room at the theater. We were worried about a snow storm overnight on Saturday extending into Sunday but we only got about 3 or 4 inches and it stopped early enough that the roads were not too bad and everyone except one boy that he invited did show up (16 kids total).
Brody has been somewhat moody the past week which we attribute mostly to him taking a Steroid recently (roid rage??) that he is getting to reduce inflammation of the nerves in his spinal colunm-- he is ok most of the time but every once in a while goes off the handle about something... we have been walking on egg shells alot of the time trying not to upset him... but in reality, he has alot to be mad about so I don't blame him for blowing off some steam occasionally.
We will likely be busy again this week--- Labs tomorrow and probably blood or platelets and he still has Radiation therapy (he has done 7 of his scheduled 15 so far) for another week an a half.
That's pretty much it with us... we are still doing as good as can be expected....more later.
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