Brody is Home

Sorry for the lack of an update-- We were able to get everything in place to leave the hospital on Wednesday afternoon. We had a lot of people (mainly the discharge planner at the hospital) jumping through a lot of hoops to get us home-- big thanks. It was somewhat easier this time around since we knew who to deal with-- it was difficult previously because the discharge planner there didn't know what resources/companies available in our area and also had to work everything out with our insurance carrier or whatnot. We have been extremely happy with Promedica Home Infusion pharmacy-- they are great about getting us stuff we need quickly (they even made a med run down to Columbus for us so we had pain/nausea medicine for our ride home).

Brody had to get his port needle replaced and a few other delays we ended up not leaving Nationwide Children's Hospital until about 6 pm and we didn't make it home until 9 pm.

Trish stayed up late organizing our new collection of meds (they are mostly the same) and writing up a new schedule that so far is working out well. Brody has been comfortable since we got home-- the big things are keeping his pain and nausea under control. His G-tube is draining nicely-- and he slept a solid 11 hours again.

Geordi is still at 6th grade camp this week (comes home today) and Jaden has been at Trishs' parent house with a cold that we want him to be rid of before he comes home-- so Brody was getting a little bored hanging out with Mom & Dad-- the boys' friend Levi came over and played with Brody for a while (Mine Craft and Call of Duty).

As mentioned previously the tumor in has been affecting the nerves going to Brody's left leg mainly causing nerve pain and he has been experiencing decreased motor function in this leg-- between this, the surgery/infection keeping him in bed for 2 weeks he hasn't really used the leg much and he is now having problems standing and walking-- he did get up 5 or 6 times yesterday to go potty which required me to carry him to the bath room... he was able to walk about half way back to his bed (with help) the last time he went last night but he can't really move his left leg much-- we are hoping this improves.

That is mostly it.... will try to write more when we get a chance.

Bill