Bill is still at the hospital with Brody-- I've lost count of how many days it has been (11 days according to the calender, seems longer). Noting the time on Trish's post I hope she sleeps in today before she comes out to the hospital (unless the time stamp is messed up on her account), she left the hospital at about 11 pm. While Mom is the night owl in the family, I do have the ability to fall back asleep fast (a trait I developed in the Navy) so with frequent wake ups, it is ideal that I spend the nights with Brody to comfort and help care for him when he wakes up at night to go potty, for his breathing treatments, or when he wakes for his vital signs. So, while I have been getting some rest it hasn't been completely restful- I feel kind of helpless and have a lot of nervous energy- I just want to do something-- he doesn't want to eat which is very frustrating.. a battle for every bite. I took a walk yesterday for about an hour-- it was very nice (spring) day yesterday-- pushing 70 degrees and sunny, shorts weather for me-- supposed to get cool again through the weekend.
He still has a fever 102.5 when they checked a short time ago, his white blood cell count is 0 now so his immune system is gone right now. So we really don't want any visitors right now. They have been weening him off his pain meds. His main discomfort seems to be his leg (Trish described this previously), and his abdominal pain seems to be stemming from gas-- it seems to diminish when he passes some gas. They tried to give him some codeine this morning for pain control but he promptly vomited it up. They will be broadening his antibiotic coverage since his immune system is so compromised and he just had the new nephrostomy tube installed.
They did clamp off his nephostomy tube this morning for 2 hours and he seemed fine. They opened it back up just now and after a short time they will be clamping it for 4 hours and see how he does.
He did sleep pretty well last night, but seems to be getting afraid of some of the hospital staff now... his heart rate takes off every time they walk in.
Thats about it for now... more later
Bill
Good to see the weekly ops were beneficial after all.
ReplyDeleteThe kids are lucky to have you two as parents. Hang in there.
Regarding eating...we used to give some of the food funny names in order to get our daughter to eat them. Broccoli became "trees" and "shrubs". On nights it wasn't so good they were "rubbery shrubbery". Carrot sticks were "magic sticks".
Your family are in our prayers.