Tuesday Night

Brody is out of PICU now and back in his regular room (much quieter & nicer).

They started weening him off oxygen yesterday and took him off oxygen last night about 1 am and his numbers remained good. He did experience some delusions again last night (they refer to this as ICU Psychosis) and could not fall asleep... it was as if he was too tired to sleep-- would start to dream before he was asleep. He kept feeling like he was falling or whatnot and just getting real upset.


He does have a fever still that seems to be controlled with tylenol.

He finally settled down about 2 am and I was right behind him (I was already sleep deprived and at that point had been up for 22 hours)-- we got about 5 1/2 hours down. He got out of the PICU around noon.

He was still tired but wanted to play some Wii-- of course we let him... He seems to like the games that his Brothers do but he isn't as good as them and gets mad if things don't go his way. Trying to get him to play the easier games but he isn't interested. Dad went home for a few hour nap and got back about 8 pm, Mom and Geordi went home about 9:30. A friend is going to loan me a few younger kid wii games that hopefully his son won't miss (Thank Rich)

He did eat some today... not a lot but better then nothing (he hasn't eaten much since he has been here and it had been a few days since he took a bite)... the Hospital does have awesome macaroni and cheese which helps and overall the hospital does have good food.

It is now about 11 pm, he just went to sleep and I'm not far behind.

Immediate outlook...

With his Chemo his immune system will soon be very compromised so while we welcome visitors, please don't visit if you are sick-   Don't be surprised if he doesn't say much... he is a bit shy around people he doesn't know well.

On Thurday he is having the tube that is draining his Kidney removed and this will be replaced by a stint that will drain his left kidney to his bladder, this is so the tumor doesn't close off his ureter again by exerting pressure on it-- according to the Nephologist (kidney doctor), his kidney function seems ok so the pressure on his kidney/ureter hopefully didn't harm his kidney. Hoping he rebounds well from this surgery... one less tube attached anyway and hopefully he can go home after not too much longer.

He had the IV removed from his hand (just using the chest port now for IV fluid). and he isn't having his Blood pressure checked so often now so he doesn't have the cuff bugging him now.

All the above is making him more comfortable, hoping we can get into a regular routine so we can get some rest.

Please feel free to comment on my blog posts... or if you have questions. If you want you can email them too me as well (if you don't think they should be public). Blog improvement suggestions are welcomed.

I will try to get some more pics up tomorrow. I do have some recent pics (from before we knew he was sick) I will upload off my phone shortly.

Thanks to everyone following this blog and to everyone that has helped us and given us their thoughts and prayers

Bill, Trish, Geordi, Jaden, & Brody...