Brody Had His Right Nephrostomy Tube Removed Today

Brody had several episodes of pain on his right side while trying to Trick- or-Treat last night.   Then he had problems overnight and awoke this morning with a lot of blood in his nephrostomy bag/tube on his right side.   I took him to the hospital.   They had us go to interventional radiology when we got there where they injected dye in Brody's tube and watched to see if the dye could make it all the way to his bladder in a non-obstructed manner.   Right-side,  they said,  appeared to flow fine with no obstruction and so they were able to pull the tube on the right side.   YAY!!!!  The left tube is not ready to come out so he still has that one.   Fortunately he has not been having problems/pain on his left side with that tube in.   Since Brody's right tube is out he has had no more pain on his right side and he has been far more active,  jumping,  climbing,  running,  spinning and just all around a very excited boy to be able to move without pain.  He did not enjoy getting the tube out at all though.   He said,  "it's always a lie when they tell you it's not going to hurt.   It just means it's gonna hurt a whole lot and it did! "  Poor kid.   He really has been through so many,  many episodes of painful situations.   Next week,  he has to have his left side tube replaced.  They aren't meant to be in as long as he has had this one in.   He will get general anesthesia for the replacement procedure,  thank goodness.   I am nervous about the left side being replaced.   He has not had problems with the left side.   I believe,  if it's not broke,  don't fix it could apply here.   I am afraid maybe if they replace it that maybe it won't be placed as well as this left one has been and it might become painful for him too.   I don't think his doctors believed it was his right nephrostomy tube causing him all the pain he has been having for so many weeks until today when it was far more obvious it was a problem and then saw how much better he felt when it came out.   I guess we gotta do what gotta do.   Keeping them in too long could increase chance of infections and the tube becoming obstructed.   It still makes me nervous though. 

The boys did have a great time trick-or-treating at Camp Miakonda (Cub Scouts camp)  last weekend.   There were lots of haunted cabins,  fun games,  and a haunted hayride.   They also went out Halloween night trick-or-treating.   It was a very chilly night and oh my goodness did they score a loot of candy.    Brody,  fortunately,  felt good for little while trick-or-treating before his pain and the cold got to him.   He feels so much better now.  

Let's hope that he doesn't have any issues with the tube being out and that he heals-up ok where his tube had been in for so long. .   We will be keeping close tabs on his ins and outs and he will get an ultrasound tomorrow while he's at the hospital for chemo to check for any possible hydronephrosis (fluid around kidney).   As long as his ins and outs are staying about equal and his ultrasound is clear and he doesn't start developing pain in his abdomen or back and he doesn't have significant fluid coming out the wound in his back where his tube was,  then he's a go to not need the tube on the right side anymore/will not need to have the right tube replaced.  

The boys and I were planning to leave for a short trip to Gatlinburg,  TN tomorrow after Brody finished chemo in the morning.  But we will need to hold-off on that for a bit until Brody goes at least a few days with flying colors without his right tube in place.   I don't want to be very far away from home and then Brody starts having issues.  Hopefully we will be able to go soon.   We were all really looking forward to the trip.