Feeling mostly ok

Brody has had a good couple of days-- he had some "gut" pain on friday night but it didn't last too long. He is tolerating the new chemo ok. He got IV chemo on friday outpatient (at hospital about 4 1/2 hours)-- but didn't experience any nausea (this chemo is hit or miss in causing nausea)-- he either didn't have any or it was controlled by the zofran (anti nausea medicine he got).

He also gets chemo orally at home each day-- he only has to drink 2 ml (less then 1/2 a teaspoon) which helps. The first night was rough in that he is scared of any new medicine... it took about an hour of coaxing to get him to finally take it. He didn't like the taste of it but he finally took it. It has become easier each night since then.

He has been eating relatively well-- being very finicky though... He has been on a French toast kick recently-- this at least has alot of calories and protein (eggs). 

One benefit of this new chemo is that it isn't as "toxic" as his earlier chemos. His counts don't drop off like the more toxic ones so as long as this holds the tumor at bay and hopefully starts to shrink it, he should feel better on this chemo then any of the previous ones so far. This chemo works differently then previous ones also-- I don't fully understand it so will let Trish explain it at some point rather then put out incorrect info.

Since it is less toxic, Brody doesn't have to go back to hospital for labs as often-- his next appointment is Friday for IV chemo and labs.

Our biggest physical concern for him right now is an obstructed bowel. He "went" ok over the weekend but has been going less the last day or so-- he gets miralax to soften his stool and we have increased the amount we give him the last few days.

Still been kind of hot so we have been staying in alot. Brody still has his nephrostomy tubes and if he sweats his dressings may come loose-- this is a relatively big ordeal to replace and Brody doesn't like it at all.

We have continued on focusing on Brody having fun-- which means him getting his way most of the time.  I did get out our go-cart (we hadn't used it in so long Brody didn't remember us having it even though it takes up a fair amount of room in our garage)... and got it working-- had to rotate the tires as the drive wheel had very little tread left. I also had to adjust the throttle to get the clutch to work right (engine wasn't turning fast enough to fully engage the clutch)-- working fine now... We rode it around our (bumpy) yard (pics/vids coming soon) for about an hour or so last night when the sun got behind some trees. Brody liked it alot but I think he would like it better if yard was smoother... it goes pretty fast and dad drives a little crazy.

I think thats it for now...

More later..