September
is Childhood Cancer Awareness month. Childhood
cancer takes the lives of more children than any other disease in the U.S. More than 13,500 children are diagnosed with
cancer each year and nearly 25% of children diagnosed with cancer will die within
5 years of the diagnosis. Three out five
childhood cancer survivors suffer from long-term side effects. The number of children diagnosed with cancer
in the U.S. each year puts more potential years of life at risk than any single
type of cancer. The
objective of Childhood Cancer Awareness Month is to put a spotlight on the
types of cancer that largely affect children and to help raise funds for
research and family support.
Children with cancer cannot be treated simply
as "smaller adults." First, the cancers that strike them are very
different from the more common adult cancers, having different causes and
needing different treatments. Also, children are being treated while in crucial
stages of the development of their bodies and minds, complicating the effects of
treatments and often resulting in life-long complications.
Federal
funding for childhood cancer research is predominantly allocated through the
National Cancer Institute (NCI). Each
year, Congress approves the amount of money that the National Institute of
Health will receive for research initiatives.
Cancer will be funded in 2012 at $5.4 billion. In 2010, the NCI reported funding for
childhood cancer research was approximately $197 million. However, this estimate could be regarded as
liberal as some of the associated research may not be perceived as directly
benefiting childhood cancer. Other more
conservative estimates put federal childhood cancer research funding as low as
$30 million annually.
To
put this into perspective, the NCI allocated $631 million on breast cancer
research in 2010. Other NIH Institutes
funded breast cancer at a level of $133 million; and the Department of Defense,
which also supports breast cancer research allocated an additional $150
million. As a comparison, breast cancer
with its overall survival rate of close to 90% and average age of diagnosis of
61 received $914 million in Federal research funding in 2010. This was in addition to the funds raised by
breast cancer organizations through their pink ribbon campaigns and private
donations. It is estimated that the
success of these campaigns raises approximately $256 million annually in the
combined assets of the top four breast cancer organizations. The success of the pink ribbon campaign and
its resulting funding for breast cancer research has resulted in an increase in
the 5 year survival rate of that patient population. Their strength as advocates has resulted in a
strong position for both federal and private research funding.
September
is Childhood Cancer Awareness Month. It
is a time to increase the awareness of the incidence and devastation of this
disease on America’s children. By
raising awareness of the fact that childhood cancer remains the number one
disease killer of America’s children, we can raise the awareness of the need
for greater research funding. Like
breast cancer, childhood cancer has an international symbol, the gold
ribbon. Proudly wear a gold ribbon and
help increase childhood cancer awareness and support. Help make the Childhood Cancer Awareness Gold
Ribbon, the new Pink!
In addition to wearing a Gold Ribbon in September, consider
participating in the upcoming Toledo CureSearch Walk for Children’s Cancer on
Sept 8th, 2012. Funds raised
from the CureSearch walk will directly benefit children’s cancer research. Brody has formed a team for the Toledo
CureSearch Walk. Brody was diagnosed
in March of 2010 with rhabdomyosarcoma (a relatively rare form of cancer but
much more common in children than adults).
He was treated for about year with a combination of chemo, multiple
surgeries and radiation treatments. He
enjoyed a year of remission from the disease.
Unfortunately, the cancer has recurred.
We received this devastating news on April 30th, 2012. Recurrent rhabdomyosarcoma has an extremely
poor prognosis. The five year survival
for children with recurrent rhabdomyosarcoma is less than 5-10%. More than 50% of children with recurrent
rhabdomyosarcoma will succumb to the disease within less than a year. Brody would not be here with us today without
the research efforts of the Children’s Oncology Group (COG). The COG is the
world’s largest organization devoted exclusively to childhood and adolescent
cancer research. Today, more than 90% of
the 13,500 children diagnosed with cancer each year in the United States are
cared for at Children’s Oncology Group member institutions. The COG has nearly 100 active clinical trials
open at any given time. These trials
include front-line treatment for many types of childhood cancers, studies aimed
at determining the underlying biology of these disease, and trials involving
new and emerging treatments, supportive care, and survivorship. The COG receives funding from the NCI,
private donations and organizations such as CureSearch for Children’s Cancer. Brody would love to have your support at the
Toledo CureSearch Walk this year. We
have detailed information on the upcoming Toledo CureSearch Walk in a previous
blog post. Please see it for more
details concerning the Toledo CureSearch Walk.
Every donation to CureSearch helps.
Even if you do not live in the Toledo area you can still help support
Team Brodinator and Toledo CureSearch walk.
It’s a great cause. Together we
can all make a big impact.
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