As mentioned previously, Brody had an internal stent put in a few weeks ago (right before his infection showed itself)-- this is sort of a tube with one end in his kidney and the other in his bladder. This is used to keep the urine flowing to his bladder and would be necessary to get his external nephrostomy tube removed.
His Nephrostomy tube was capped last Wednesday and they have been closely monitoring his labs (specifically his Creatinine and Potasium). Both were actually significantly higher the day the tube was capped then they were the previous time they were checked. But since then, they have both come down to his "normal" range. He also had an ultrasound done on his kidney on friday and it looked good (no hydronephrosis).
He is scheduled for surgery to remove the external nephrostomy tube in a couple of hours.
Brody has been eating and drinking well the last few days-- we actually were concerned about his drinking as his taste change over time and things he liked previously he doesn't like anymore--- he was pretty much down to chocolate milk (a specific brand) and water. Trish made a party punch before that the kids liked so she made a batch of it and Brody has been going to town on it... it contains pineapple juice, orange juice, sprite, and cranberry juice. Brody made up the last batch of it and this is mainly what he has been using to stay well hydrated-- this is especially important when you take chemo drugs and some other drugs as they can be hard on the kidneys if you don't flush them out.
We have all been real busy with the boys starting back to school last Thursday. Trish and I are volunteering in Brody's class to help the teacher and students in his class but to also be there if Brody needs any help with anything and also for germ/sanitizing control- Brody's teacher and the rest of the school staff has been amazing with Brody and with our situation. So far Brody has only made it to the first day of school (between labs, ultrasounds, chemo, and now surgery)-- but we are hoping things settle down soon. While Trish and I are confident in our ability to home school Brody if the need arises we want him to experience school for the social and other aspects of school which we can't really provide.
Geordi has come down with a nasty cough/chest congestion-- a friend of ours (who's son is one of Geordi's best friends) has let him stay at their house while he fights this-- his cough is mainly bad at night-- hopefully he is better soon.
Thats really it with us--
More later...
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