Friday, August 2, 2013

Uneventful night

Uneventful night-- Brody went to bed at 11:30 last night (he kept wanting to watch some toons but I cut him off-- he was obviously very cranky and tired (just like his Dad) but did not want to go down (unlike his dad)-- He ate pretty good last night-- a few bowls of cereal, spaghettio-s with meatballs (he usually just eats the meatballs), strawberries. He is still sleeping and looks to be pretty soundly.

Trish took Geordi and Jaden home last night and I (Bill) stayed the night with him and got about 7 hours down-- I feel somewhat human again.

Brody has continued to have pain from the surgery-- it is not very invasive but can still hurt. The pain seems to be well managed. We have a love/hate relationship with nephrostomy tubes-- they alow his kidney to drain easily and keep it healthy-- without a healthy kidney-- he can't continue chemotherapy. But the bad side is he has a hole in his back-- no swimming, showers, etc.. and Brody loves the water-- and it posses and infection risk. We aren't looking too far out at this point-- we are hoping if he needs a way to keep the kidney healthy we can hopefully internalize this later (get another stent put in).
 

 His Serum Creatinine has continued to drop. The 11 pm one was 1.21, the 5 am one was 1.09-- as Trish mentioned previously, it needs to be below 1.0 for him to get Chemo. Pottasium levels are not an issue anymore (he is toward the lower end of normal now). Everything else is looking pretty good. Brody's doctor said previously she wants him to be montiored til Saturday at a minimum as the medicine for lowering potassium can through the other electrolytes out of whack... his phosphorus and magnesium are still kind of high but are trending toward the norm.

Are goal today is to get the kid out of bed-- he got out a few times but just for a few minutes-- want him sitting on a chair or a couch not laying in bed all day and hopefully get out of here tomorrow...

Thats about it for now.

Bill

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