I can only echo what Trish wrote about how we feel. I hardly slept at all on Monday night (I maybe got 2 hours of sleep total-- it seems I was up the entire night with thoughts running through my head) and I can usually sleep no matter what. I am still in shock. We are all dealing with this a well as possible. While Monday was horrible with the news-- Tuesday was much better. We kept Brody home from school tuesday as we had to collect his urine for 24 hours for a Creatinine Clearance test (don't ask me exactly what it is, only that it is to measure his kidney function)-- So Brody and dad got to hang out all day-- he made me play video games most of the morning (and pulled me through alot of the levels in Toystory 3 on our Playstation 3)-- I finally got him off the couch and we went to McDonalds for lunch the park and played for a couple of hours. Trish showed up about 2:30 or so and we played a bit longer til we had to go home and get Geordi and Jaden off the bus-- we went back to the park later so Brody could show his brothers how he could make it across the monkey bars by himself (most of the time).... Brody is feeling well right now-- and we are enjoying just spending time with him, he is such a blast to be around. When he resumes his treatment he isn't going to be feeling as well (at least some of the time).
I can't explain how feel at this time-- I am dealing with this as well as I possibly can and am trying to be a rock for the family. I really don't want to talk about it much at this time as it is painful to me to just tell people the news.... But I don't want to anyone to think that I am depressed or anything---I can't help but be happy when I am with Brody.
Trish has been pouring over studies and treatments that I couldn't begin to understand .... as you can imagine after reading Trish's post we are exploring all options to try and improve Brody's outcome.
We plan on having as much fun as possible this weekend--- We plan on seeing the Avengers (we recently watched the Captain America, Incredible Hulk, and Thor--we had seen Ironman 1 & 2 a while ago) this weekend and maybe a waterpark.
Trish is taking time off her job. I plan on continuing to work my normal shift rotation like I did last time with some modifications as necessary as the needs arise based on Brody's treatment-- My employer has said they will work with me as necessary. Which obviously makes it easier on us and for this I am very thankful..... if anyone is interested this is where I work.... http://www.northstarbluescope.com/ (I've been here 15 years-- I can hardly believe that!!)
Well I think that is all I have to put up right now-- we will obviously be keeping this updated. Thanks to everyone that has followed this and it does give us some comfort knowing that we are in people's thoughts and prayers.....
Bill
You are a rock Bill. Both of you are. Brody sounds like an amazing little guy. If you ever need to talk just give me a call. or e-mail or whatever. We can try to remember all the stupid stuff we did as kids.
ReplyDeleteLove you Brother.
Theresa