Sloan-Kettering is reviewing Brody's case on Tuesday

I called Sloan-Kettering again this morning looking for an update as to when Brody may be seen at Sloan-Kettering.  I was told that Dr. Wexler and Dr. LaQuaglia will be reviewing Brody's case in their Tumor Board meeting on Tuesday.  And, then after this review they would contact us to schedule Brody to be seen at Sloan-Kettering.  YIPPEE!! We are moving forward! 

 

Brody continues to do ok with handling the chemo he has started so far.  He is very tired and napping a lot and he is experiencing some diarrhea but nothing really severe.  He has been having intermittent extremely painful belly aches that I do not believe are related to the chemo but more so from the tumor itself.  Generally, the episodes occur a couple hours before he needs to have a bowel movement.  I think the tumor is making easy passage of bowel through his gastrointestinal tract extremely difficult.  It is so difficult to see him in so much pain and not be able to do more to help him.  Fortunately these episodes have not been lasting for very long periods of time.  Generally last about 5 mins or so each time it happens.  But 5 mins is a VERY long time to be in tremendous pain. 

 

Brody hasn't felt like doing much besides watching TV, playing video games, and board or card games, and reading.  Brody has been cudling up in his Hulk blanket and take some long naps.  Nurse Amy from Brody's school made him a very nice, large felt Hulk blanket.  It's Brody's favorite blankie now.  Thank you, Amy!  He also got a new giraffe, giraffe book, and a Hulk figurine.  He will not let his brothers play with the Hulk figurine and has been very careful not to keep it where the puppies might get a hold of it.  Amy told him to keep the mini-figurine in his pocket to summon Hulk strength.  Brody thinks this is a pretty good idea.